The COVID-19 crisis may seriously affect the experience of death and dying of patients, relatives and health care professionals. Whereas the COVID-19 epidemic will probably continue for months or even years and is unlikely to be the last epidemic in the world, we need to try to learn from people’s experiences now. The aim of the current study is to support clinical practice in finding the right balance between ensuring that care is safe and addressing major public health interests on the one hand, and providing care that is humane and addressing the needs of dying patients and their relatives on the other.
The study objectives are:
1. to get in-depth insight in the characteristics, barriers and facilitators of high-quality end-of-life care during the COVID-19 pandemic,
2. to better understand what facilitates saying goodbye and bereavement during the COVID-19 pandemic, and
3. to develop guidance and best practices for healthcare professionals to continue to provide personalized end-of-life care while adhering to safety guidelines to prevent further spreading of the virus.
We will perform an open online longitudinal survey study in which respondents are asked questions about their experiences with end-of-life care for a recently deceased relative or patient. Respondents are invited to also fill in follow-up questionnaires after 4, 8 and 13 months, and to participate in complementary in-depth interviews.
The results of the questionnaires and interviews will at regular intervals be presented to citizen and professional experts, who are asked to provide advice on how to translate the findings into guidance for clinical practice.
APH contact person: Bregje Onwuteaka-Philipsen
This is an initiative taken by APH researchers as a result of the COVID-19 outbreak. If you have an initiative to be listed as well, please email us.
Back to main page APH COVID-19 initiatives